Living with Autism

Living with Autism
October 13, 2020 Our Circle of Moms
In Amy Dienta, Autism, Mommy Blog

By: Amy Dienta

Having an child with Autism is like living everyday on a roller coaster. There are up and downs and turns everywhere. There are good days, and days you want to scream all the way to the end of the ride. 

UnknownThere are days he covers the entire wall of the bathroom with toilet paper in a design. Other days he decides to do an “experiment” and puts flour all over the kitchen. Or in Omar’s case tries to turn paper towels in to paper or mix everything to make clay. 

The journey to how we got here is filled with hours of ABA therapy, speech therapy, occupational therapy. and lots of appointments. Lawyers to get the school services he needs and going back and forth over his IEP. Until he was 2 and the doctor told me about melatonin, I never slept because he never slept. 

Special needs parenting takes patience, support, and lots of love. It involves sleepless nights and Google searches on poop at 3am. It’s trying to find activities your child can participate in that he won’t get run over. It’s rinsing the red sauce off the pasta because tonight he won’t eat it. 

With this comes stress, anxiety, and worries of are you doing the right thing. Worries about how much therapy is too much. Weekends planned around occupational therapy for years. With all these decisions you’re just hoping you make the right one. 

No one chooses to have a child with autism, but I’m glad my child is who he is. He’s amazing, funny, and smart. He can tell you the measurements of the Titanic or talk about space like he’s a college professor.  He’s going to have an amazing future, and I can’t wait to see what it brings for him.

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